Tuesday, February 8, 2011


It is CHD AWARENESS WEEK... and I have yet to post a blog about awareness. This is not because I am slack or I am lazy or that CHD Awareness is not one of the most important causes in my life.  It is because this week our family has been hit by great loss.  To say I we are heartbroken would greatly under estimate our feelings but it is the only words I can find.

This week, I have seen a beautiful life leave this world for heaven. I have seen a mother tell her baby goodbye for the final time. I have seen a beautiful 6 month baby boy laid to rest. I have cried out to God, Why? I have felt hurt, anger and sorrow but yet I know that I have not felt one ounce what my sweet cousin, Amy  has felt in saying goodbye to her child, Baby Jayden. Today was his funeral and it was a precious service and so fitting for him and his life. He was a light to this dark world but God had bigger plans for him. I know he rests at the feet of our Savior.  In this I have complete Faith.  I will see him again in Glory.  My life is forever touched because of him. I love this child like my own and he carried a piece of my heart with him to heaven.

However, today I can say that somehow as our family's world has been turned upside down, off set into a time warp so to speak. I have become more AWARE.  Aware of how life is so fragile and that it is fleeting.  Aware that all around us there are things happening beyond our control.   To me it is not fair for this to happen. It is somehow wrong, yet it happens every day. Somewhere, a mom is saying goodbye to her child, every day.   Oh God, I cannot imagine.

As a mother of a child with CHD. I am AWARE of the risk, I am AWARE of what could happen. This is why I care so much about CHD AWARENESS.  Our message needs to be heard. I never knew what a CHD was until it happened to our son. Until we almost lost him. I can say during those hours of uncertainty I could barely breath, much less stand.  Yet everyday mothers are losing their children to a monster called CHD and many of them have never even heard of it until it happens to them.  We are 1 of 100 and we had to ask.."What is a CHD?"  This should not happen.  

Our sweet Jayden was not a Chd baby, he had a brain injury and nothing I could have said or done would have changed that.    I know that I cannot control CHD either, but I can be a voice and tell everyone about CHD and the signs and the simple test that can be done in a hospital that can save another family from the heart ache of losing a child because of an undiagnosed CHD.  I can do something, I hope you will too. 

Spread Awareness...Spread Hope...Support Research.... Make a difference!

Rhonda ~

RaRa Loves You Jayden....One day I will hold you again


  1. I'm so sorry to hear about the loss of sweet baby Jayden. You and your family are in our thoughts and prayers during this difficult time. He was so precious!

  2. I'm so sorry Rhonda! I've been thinking about you so much over the past few days. We're praying for you, Jayden's mommy and daddy, and the rest of your family!!!

    Lots of prayers!!

    Can't wait to see you Saturday!

  3. So very sorry Rhonda! I know how very hard all of you fought for Jayden. His parents gave it there all to make sure that he had every chance in this life to live. Saying many prayers that they will find comfort in that and be filled with peace as their hearts heal!