Have you ever just been going about your everyday life and then something out of the blue, just makes you stop in your tracks. Well I am sure that most of us have. This is my stop in my tracks moment. We recently got some pretty exciting news that I will share with you at a later date ( yes you will have to wait) but part of it involved a letter I received. This is the one line from the letter.
Dear Mr. and Mrs. Lyle,
We have been informed that your son Sawyer Zeb Lyle has a life threatening condition/illness.....
As most of you know Zeb has a Congenital Heart Defect and had open heart surgery 6 months ago today exactly. This is our 3rd year of the knowledge that our son has a CHD, so we are not newbys or anything. However to actually read this on paper, actually made my heart skips a beat. It is one of those surreal moments that you wish you were reading a line out of a fiction novel. You have a quick reaction that you know in your mind is denial. You say to self, well they cannot be possible talking about my child. It is not a fun thing to see it in writing and to have to face the reality, that yes they are talking about your child. My beautiful precious growing 3 yr old son, who looks like any other healthy 3 yr old, but underneath he has a broken heart. Even though, he is doing very well and thriving, CHD will never go away, it is a life long condition. We are very Thankful that Zeb has done so well and for the awesome doctors who monitor him and his progress. However CHD is still part of our everyday lives. It doesn't have to be a death sentence. It is still the #1 birth defect. There is still not enough research. There is still too many children who do not live to see their 1st birthdays. There is still not enough awareness. Most mothers and fathers to be still do not know what a CHD is and that 1 in 100 babies are born with it. Every 13 minutes a baby is born with a CHD and eleven of them to do not make it. It is not enough. This is why that it is so important to spread awareness and to support research. Research is so important and so under funded. TO a mom with a child with CHD, research means everything. I am proud to be a part of a wonderful
non profit organization that does just that, research is a priority......
To find out much more about Hope for BraveHearts, please check out my friend Shannon's Blog and meet
her amazing lil miracle, Derrick.
Get involved...Spread Awareness, Donate to Research.... Make a difference..
and hopefully one day no parent ever has to hear " Your child has something wrong with his/her heart." or
they never have to stop and reread a simple sentence in a letter about your child, because it takes your breath away .
|Our Little Fighter!!!|